Claire

Let’s change it up.

This morning I came across this video, Claire Wineland on How to Live When You’re Dying, from an amazing young woman, and she has a very fresh and inspiring view on living with an illness that is incurable.

I almost feel like I don’t fit in any category with her because her illness is very physical and her life expectancy is so short. Yet here she is talking about the pitfalls of dating, the joys of living overseas and travelling, the experience of going to university, and the fun of going out with friends. Almost as though she wasn’t sick.

How’s that for a radical life? Putting your illness in the corner, and going on regardless.

She embraces a life of living so that when she dies, however soon that may be…and compared to most of us its very soon, she will have lived a full life that she can be proud of. Her fears? That she won’t have lived. That her illness will have been her whole life. That she lived to die.

I tell you, I admire this girl so much! It is hard not to think about your illness all the time: how it affects you, how its changed your life, what you don’t have compared to other people. And I don’t have a life expectancy date hanging over my head! Sure, I’ll always have this illness, and there’ll always be issues to deal with, but death is not a guaranteed part of the package. Not any more than any other person in the world.

Check out this girl.

Whether you have a chronic illness or not, her take on life is so refreshing and I feel like it gives me a kick in the pants to try a new philosophy. This is not about being fake and pretending nothing is wrong. That is never helpful, or useful. Something is wrong; lay that on the table to begin with. But life goes on. This is about finding a way to live around your illness, and still living a fulfilling life.

It will always be something of a struggle to push past illness to life. But it can be done, at least some of the time. So let’s give that a go!

Find a way to glow

 

For an extended version of Claire’s interview video, check out Cystic Fibrosis taught me there’s no “normal life”

Canberra Day Two

12th September, 2016

Whatever else happened today, the photo of the day HAD to be of the weather! A fresh morning of 7 degrees with blue skies and gorgeous sunshine. The temperature climbing gradually to 17 degrees! Ahhh! I just loved being outside today, warm air stroking the skin then a cooler breeze then the cool and warm air mixing but never joining. If you were warm you could move to the shade and the breeze would be enough to soothe you; if you were cool you could step into the sunshine and be warmed up – my perfect kind of day!

The day started with tagging along to hubby’s work at 8.30am so that I could take the car for the day. I pulled out into traffic from his office and saw a sign for the information centre so I headed there for yes, more brochures. I do love brochures! I’m going to be the most cultured and knowledgeable Canberran there is! The info centre is on the banks of Lake Burley Griffin which was looking stunning in the sunlight. I heard the sound of a creaking door as I left the centre which can only be from a Gang Gang Cockatoo, so I tracked it to a pine tree and got a photo right there at the info centre! Definitely a highlight – we don’t often get them close around Melbourne. I could see where they’re setting up the flower festival right there as well, gorgeous beds of tulips! I’m looking forward to checking that out once its open.

I should mention that I was trying to find my way around without using a map or GPS. I do that; I don’t know why. It’s silly, you can’t intuitively find your way. I did okay for some of it but there may have been a couple of laps around the city having missed my turn! Ultimately I resorted to GPS!

I do love the days when I get up early. I feel so much more productive, and even if I spend a couple of hours on one thing, I turn round and still have hours to go. So at 11am, the day was still wide open. I wanted to get my bird watching off to a start so I headed to Black Mountain which is where the Telstra Tower is and went on a 2 hour walking loop. The signs being not all they should be, that turned into a 3.5 hour hike steeply up and down the mountain! I was pretty exhausted by the end, not to mention blisters on my heels and arches and chafed thighs. It’s amazing to me that I wouldn’t have considered that the path would be steep, the name of the place being Black Mountain. Another of my classic disconnects.

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So here’s my photo for Day Two. A perfect combination of the day: blue skies, sunshine, beautiful bush and birds, a stunning Crimson Rosella.

I’ve decided to put whatever photos don’t make the cut for photo of the day onto a new website that I’ve just been setting up these last couple of weeks. Bear with me while I do so, it’s very much a work in progress but you can see my other photos from today (and yesterday, forgot to say so) at my site. Click on Black Mountain Views or Black Mountain Birds to check out today’s photos.