Dozy

Dear lovely readers, I am having the best time! I’m well, I’m happy, I’m productive, I’m energetic, not needing as much sleep or naps, I’m doing stuff, back on my bike, I’m out taking photos of birds, socialising, I’m having house guests, getting organised, spring cleaning of all things!! It’s remarkable and it’s thanks to my psychiatrist, thanks to the extra purple pill per day that I’m taking and thanks to my brain for accepting the intervention gracefully and allowing these happy days. I owe thanks to every lovely person who checks in on me when I’m unwell, so thank you so much; I’m glad I can write good news!

[Written a couple of weeks ago on One Of Those Days! I’ve been too busy living a happy life to write this week! YAY!]

Today I didn’t wake up, not altogether. I’m feeling a bit dazed, and a lot like there is a thick fog well settled well over my brain, and down over my neck, my shoulders and half way down my chest!

I’m struggling to open my eyes, and to keep them open, more to the point. They certainly aren’t fully opening. They just have an irresistible almost magnetic draw to close, and the sleep in the corners of my eyes clagging them together is adding to the problem. You know those moments, when people say they need matchsticks to prop open their eyelids? Except that’s usually at the end of the day, not the start of it. Bleary eyed, irritated and itchy, my eyes just aren’t ready for a new day. I realise this isn’t a first in the history of humans. Other people wake up like this too, it’s not just me. But this is after a full night’s sleep, a good rest. I should be rearing to go.

My whole body feels like its wrapped in a deliciously warm lovely blanket from which it would have to put up a great and tiring fight to escape. Well, I guess that’s not so metaphorical; I am still in bed, and I roll around enough in the night that it’s quite likely I’m twisted tight in the sheets by morning. My body is heavy and weighty and it just seems too hard to move it at all. And why would I want to put in that level of effort when I’m in such a nice situation? Oh yeah, to be the adult that I apparently am. But I can’t really think straight enough even to start planning what shape the day is going to take. What time do I need to get up again? And do I really need to get up, or can I cancel whatever I had planned? Assuming I can actually get this hefty body up out of bed. It’s like I’ve lost all muscle tone and I have to use my mind like a lifting machine to lift each dead weight limb, one at a time and they won’t cooperate! You know, one of those caterpillar diggers with the lifting clamp? Or one of the machines that nurses use, whichever environment is easier for you to visualize.

Drowsy, thick in the head, awful eyes, impossible body, can’t see where to start. And it’s my fault, my husband would remind me! Love you, baby; you really know how to phrase these statements. I am of course joking, he only says it nicely and when I know its the truth anyway.

But it’s true, it is my fault, in a manner of speaking. I took my tablets too late last night, and now I’m hung over. Basically.

I take my tablets by alarm, sort of. When you are prescribed a medicine that has to be taken twice a day, you should ideally take the 2 doses 12 hours apart. Says Miss Pharmacist, but what does Mrs Patient do? So, when will you take it?

It actually takes a bit of working out. Will you take your tablets at 7am and 7pm? 8am and 8pm? Really anything 12 hours apart works. Except there’s a complication because one of the tablets that you take at night with the second dose makes you drowsy and then comatose! It kicks in anywhere between 15 and 30 minutes usually. Sometimes it doesn’t really kick in for ages and I can stay up for an hour longer or more, but sometimes it kicks in fast and that’s it for the day. When I feel it starting to make my eyelids heavy and my insides warm and fuzzy, I head upstairs before I can’t stand straight anymore from dizziness and lack of balance! Please never try to see me at this time of night: the whole whites of my eyes go reddish and I scare myself looking in the mirror! It’s all gone by morning thankfully. In the past I’ve tried to push through the sedating effects but they won’t be argued with! I’ve crashed my way around my bedroom, lurching from wall to wall unbalanced and unable to see straight, and unfortunately having to go to the bathroom! There I sit, having done with the toilet, unsure if I can stand up and get back to my bed next door, feeling weak and heavy as a dead weight. Ask my husband, I think he’s had some interesting amusements in the early days of me using this drug! I’m talking about quetiapine, a mood stabiliser very well known for the drowsiness that it causes, among other things.

So, theoretically I could take my morning tablets at whatever time, then most of my evening tablets 12 hours later, then the sedating medication when I’m ready to go to bed…but that means having life interrupted 3 times a day instead of 2. It sounds trivial when I’m taking so many meds crucial to my health, but when I’m well I’d rather not spend all day taking tablets. So I want my meds in two convenient slots, but what times? If I’m working, this is especially critical. I want to take my meds before work, say 8am. But I don’t want to take my sedating tablets at 8pm and go to bed with the children. Plus its so early in the evening that I’m be sure to be awake bright and early at 4am or something inconvenient! So I tend to push out the night dose to 9pm, 10pm or later. If I’m busy, I just wait til I’m finished doing whatever I’m doing and I’m ready to go to bed and THEN I take them. I intend to get to the point where I’m NEARLY ready for bed, take my tablets and get a little sleepy while finishing off whatever, and go to bed nice and drowsy read to go off to a deep sleep. But I often forget and finish what I’m doing completely before taking my meds. The later I take them, the more likely it is that their effect will hang over into the morning. By much trial and error over 2 years, we’ve figured out that 9 to 9.30pm is the ideal time to take my meds at night, giving me possibly up to 10pm to do whatever in the evening and allowing me to wake up fresher. But unfortunately last night I took my sedating tablets at 11.30pm! Which messes up my system, although it is a fairly flexible system to be honest! When my night tablet alarm goes off I’m just as likely to snooze or ignore as I am my morning alarm. Some little rebellion in me about having to take meds. It never works out well for me. And so, here we are. Sedated, drowsy, heavy, tired; finding it hard to get going.

It’ll get better but slowly, across the course of the day, and it’s probably just going to be one of those days where I shouldn’t drive, need to find something riveting to do to keep me awake, or just succumb and stay in/go back to bed! I guess this is one of those days where not having a job works out for me. I might manage to get up and go to work on a day like this, but it’s questionable what quality of work I would produce, and it’s probably in most people’s best interest that I don’t go at all. So if I’m working, I need to be a lot stricter with myself in taking my meds on time. There’s a fascinating concept called presenteeism which I recently became aware of. You know, like absenteeism where you’re absent from work? Except this is when you are unwell, under stress or otherwise compromised in some way, but you turn up anyway and consequently put in a worse day of work than you might usually. A workplace was looking at how much presenteeism cost them as opposed to absenteeism, and whether it is really better sometimes for staff to just stay home. Doing so would theoretically reduce errors, complications, injuries that may arise from incomplete focus. I don’t know how they’ll measure any of it, but I’m watching on with great interest.

So yes I supposed you could say that being hung over and non functional is my fault. I get tempted to have late nights, to be like everyone else, carefree and not worrying about things like tablets. I know it’ll catch up with me the next day, but in the evening when it’s all going down it doesn’t seem as bad as it will be in the morning. So I push out the time a bit here and a bit there, a lot here, too much there! I do have to be careful that I don’t get myself into a different time zone, taking my tabs at 11pm and 11am or worse and really messing up my hours. While I’m off work I can be a rebel and mess up my sleep pattern and sleep in til lunchtime. Who cares, basically! But work is something that I want and need, and when it comes it’s back to taking tablets by the alarm. Like a good girl. For the best.

Victory Part Two

[20th June 2015]

Where was I?

Ah yes, bicycle, perfect timing, much enjoyed.

So this week was going to be epic! Until it rained, and rained, and rained. And spoilt my plans! I had my diary set: Tuesday ride from Strathmore, new one for me so that should be fun, Thursday repeat of an earlier ride from Maribyrnong to Williamstown, but hopefully no head wind on the way back this time and so a more enjoyable return! Then there was a ride on Saturday, to follow up our skills session with Bridie O’Donnell, along Beach Road for a road ride. That was a tentative. I haven’t done a road ride in years, and never in a bunch, and not since uni days, and was I really up for it? Definitely a query! In the end I read the updated description and it was for riders above my level so I let that one slide.

Tuesday I was up and at ‘em! This being the most recent morning after the night before when I missed my tablets! So I was firing on all cylinders! Chatty, energetic, ready to kill it on the ride! Etc! But it was cancelled. It wasn’t actually raining but it had been pouring with rain at 3am when I woke up for the day on a short amount of quetiapine-absent restless, fractured sleep! Our leader had been out to check the course and it was wet and slippery. And honestly, I’m having such a good time, and haven’t crashed since my chest infection-induced stupor in week 3 and I’d like to keep it that way. Don’t need any discouragement! So it was cancelled, but there’s always coffee and cake,Whee girls!! So I traipsed across town anyway for a good old catchup! And a divine cookie sandwich!!! I haven’t come across these till now, other than a Maxibon, but these are two yummy flaky bikkies with, in my case, vanilla bean cream in the middle! Very indulgent and just the best! Pin Oak Crescent, Flemington, people, opposite Newmarket Station! Wolf and Hound if I remember correctly! Worth the drive.

biscuit, latte, cafe

A Butterbing cookie sandwich and coffee at Wolf and Hound – not my coffee obviously

So that was all good, no ride for understandable reasons, and nothing could bring me down that day in any case, so a great day to bear with not getting to do what you hoped! When I say nothing could bring me down, I mean being too scatter brained to bring my phone charger, and my phone going flat from running GPS directed maps just as I got to the edge of my comfort zone and needed directions! But bipolar brain is super human and says, oh well, just drive up Flemington Road; you’re looking for an address in Flemington, you might get lucky! Well now we’re in Moonee Ponds so let’s turn around (not easy to accomplish!) and find a 7/11, surely they sell Melways. No you don’t? But I see a copy there, maybe I can just look up an address? Use your phone, are you sure, really I can look it up? Thanks, you’re a lifesaver, actually look it’s just nearby, 2 turns from here! Perfect, and I’m right on time! Thank you manic bipolar brain, you got through that mishap easy as pie. Of course, it is your fault about the charger…but everything else was great!

Cue Thursday. Restarted quetiapine on Tuesday night. There’s still some in my system, but miss a dose and boy, does the next dose feel like the first one! That first dose gives you the full side effect gammit: drowsiness like I’ve been dosed up with morphine, absolutely stupid after half an hour of taking it, cannot form words or walk anymore! Dry eyes makes them fully red which is just perfect for looking like a slurring, incoherent, stumbling lunatic if you happen to need the loo bad enough to get your eyes open and magically force yourself out of bed! Nose, eyes, mouth as dry as the desert, can’t pee or poop as much and boy is it hard to wake up the next day! Even if you wake it takes all morning for the sedation to wear off. Often I’ve just given up and gone back to bed at 9am, 10am, 11am. So Wednesday was not much of anything! In fact I sat in the same spot for the majority of the day once I finally got up at 11am to get breakfast. Think I did a load of laundry. Watched some Agents of Shield. Played Words with Friends. Ate lunch at 4pm. Tried to get my brain around our Wednesday bible study chapter. Started to think about dinner, then waited for my hubby to come home and make it. Bit of a washout day. But I knew that was coming, so yeah.

games, friends

Love this game! My husband isn’t such a fan, reckons I let him win so he’ll keep playing with me…so he stopped playing with me! Always happy to play with new people. This is one of the few activities that helps me feel like my brain isn’t rapidly shrinking!!

Thursday. Plan: repeat ride to Williamstown, without the head wind on the way back, if it please the Weather Bureau! 28 kilometres, gorgeous scenery, good friends, what more could we ask for? The forecast was 13 or something, but I have my neck gator, my head scarf, my new arm warmers, gloves, and a vest and coat to layer over my jersey, so no worries, plus I’m always warm on the inside! Despite the hangover effect, when my alarm went off at 8am I jumped right out of bed! Miraculous! Truly miraculous. The joy of the ride, the pleasure of good company, the scenic delights awaiting; my brain is on full anticipation mode, waiting for the lovely things the day will bring, which will in turn deliver to me those much lauded blessings of endorphins, serotonin, dopamine, etc. It’s the dopamine that has the upper hand if you ask me. Once I finally got to that place of enjoying in my riding, my dopaminergic system started its reward seeking behavior that drives addiction. There, I said it, my brain is starting a powerful connection between riding and good things, and it wants more!

I’d organized to car pool with a friend from the course, the first time Little Miss Independent has let someone else take the wheel and do the driving. A big moment of letting go the control, and making friends! So nice to be trusted to go to someone’s house, meet their family, share an experience together. I’ve always considered myself a bit awkward socially, a bit challenged at making friends and as a little kid especially this was true. I’ve had my own friends, my school friends, and work friends. But I’ve always had my own space, where no one else goes. I’m finding it’s different with riding, because you really share common experiences so we have something together that binds us, and no external person can really share in it because they weren’t there. It’s fascinating to me, to see how this works, and to be a part of it! We share our insecurities, our weaknesses, our doubts in a way probably none of us would fully own out loud in any other situation, and probably not with our partners or other friends. Because in this course it’s okay to be scared, to not know, to be worried. It’s ALWAYS okay to be how you really are and what you really feel and no judgement is even thought of, because this is a place of learning and building up skills and encouragement and doing it together. That’s why we love it!

boardwalk, pond, rushes, bike

One from the archives. Back when I could still fit into my wardrobe, barely, March 2014. Remember I told you my hubby took me for a ride and it wasn’t the best? This is it! A brave smile!

—RIDE CANCELLED— As I’m walking out the door, socks, runners, leggings, jersey, neck warmer, ear warmer, gloves, vest, coat, lights, ready to go to my friend’s house to car pool, my phone beeps. I’ve got my bag with helmet, bike computer, bike mechanic kit etc on my shoulder, I’ve grabbed breakfast, filled up my drink bottle, got the car keys in my hand, bike in the car…cancelled! Cancelled! Ohhhhh. Deflated! But I’m ready to go! But that was the last organized ride for the week that was at my level! But I’m up, and if it was any other day I’d be asleep til 10am while restarting quetiapine, but I’m up! I’m up! Okay, so it’s wet and slippery, but I’m up!

This is no criticism of Wheel Women ride organization! They do an amazing job many times each week, and absolutely made the right call! No disagreement. But I was up! And I wouldn’t be if it weren’t for the anticipation of friends and bike riding. Which is obviously a powerful thing, more than I would have ever expected from myself! So what now? Honestly I was flummoxed, wind taken out of my sails, left without purpose! So I sat down at the kitchen table, stared blankly at the wall and tried to think of what to do! Called my husband cos I was all out of ideas! Couldn’t think what to do next! It really had hit me for six, even though I always knew it was weather dependent. But I was going to go out and tackle that ride anyway, and do better. And now I wasn’t going anywhere! Huh!

blue sky, silver gulls, court house

A stunning Williamstown day on another ride

That was a great lesson to me, to find how much I depended on going riding, and expected to go, and could go the extra mile to get to the rendezvous point on time and all organized, because I wanted to go! Here are some powerful abilities that I can harness and use!

So, what to do? Actually I had a pretty flat day, which is so interesting to me, and something I can work on for next time for whatever disappointment inevitably comes. How can I response differently, better, not let myself get so deflated? I was still in a pretty soggy condition when my hubby got home so he set me to think up rides that I could do the next day. It was a great idea, but I parked it on the shelf. Right now though, I’m inspired so I’m going to try to do that, write a to-do list of bike rides for the future so that I always have a backup plan.

Inspired. Me, right now. Why? Its two days on from Thursday, and today I went and did that ride that was planned and cancelled with my husband, and it was great! The weather was cold but sunny, the scenery is always spectacular on that route and we had fun! Then we went and checked out the cyclocross race nearby and I got my fix of bikes and I’m feeling fine! Better than, in fact. It’s 10.48pm and I’m still tap tapping these ideas that were floating in my head while riding. Turns out riding really gives your head space to process ideas!

cars, blue sky, silver gull

Silver gull parade!! These ‘rats of the sea’ are standing guard waiting for the woman to finish her meal and hopefully leave some chips so they can all swoop in and grab the scraps

And that’s not the end of the victory parade.

The following Tuesday our ride was cancelled before the actual day. But I woke up that morning to a text from one of the lovely girls in our group asking if anyone wanted to do a replacement ride. What a genius, and what a great idea, and perfect for feeling like we haven’t missed out. Yes I did want to do a ride, so we met up really close to home and did an 18km ride together. It was a bit tougher than a lot of our other rides with a few challenging hills but we looked out for each other and I felt so satisfied by the time we got back. We had a nice coffee and cake at a cute new café, and I just loved it! Being independent, and able to tackle a decent ride on our own, and feeling like we’re capable and equipped; satisfaction! And it feels like a victory! I still want to do as many organized rides as I can, but what a feeling to be able to run our own ride if it falls through! Yay!!

So on Thursday, when the ride was ‘only’ 13km, we improvised and went the long way back to the cars together to draw the ride out to 24km. Imagine that! After such a slow, difficult start, I now feel a bit cheated if we don’t do 20km! I mention ‘only’ because the leaders would sometime say this to us, it’s only 6km, its only 13km etc. And I would think to myself, only, ONLY?? What are you talking about, only! I’m not at the only stage, every peddle stroke hurts. It was fascinating on Thursday because we rode the first ride we ever did to the bike store, which I thought would never end as I wheezed and sweating and burned my way along the ‘only’ 6km. And this time we got there in 10 minutes, before my legs had even warmed up, and suddenly we were there and I couldn’t believe how it didn’t hurt, or require much effort and we passed it like it was a kilometre from the car park!! That’s progress, and it’s so exciting!!