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Before I post this week’s missive I just want to say a huge thank you to each and every one of you who stopped by my little blog last week and read my disturbed thoughts. I was very much of two minds whether to post anything so personal and dark, but you all were so faithful in reading what I wrote, and those who contacted me were so kind that you restored my faith in writing the whole ugly truth. I love you all, and watching the stats rise was such an enormous encouragement to me! THANK YOU!

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Written late April 2016 after my latest work contract ended; updated 20th June 2016.

“I worked my a*& off to get back, really back; harder than I’ve worked at anything my whole life. ” – Detective Marcus Bell, Elementary

…”because there’s nothing like getting back for getting better” – current WorkSafe Victoria Return To Work campaign

Getting back; it’s what everyone recommends for getting better. I resisted it for a long while in my original sick leave but in the end I found that it was true! Occupation, purpose, time consuming work; it all helps to develop an inner feeling of being better, getting  back to normal.

But, as my deepest darkest suspicions have been humming a tune all along, it’s not enough. I’m not enough. My efforts are not enough. It was a dark moment! Or two…

There have been tears, and more tears; it was so disappointing!

More doubt, more undermining of my confidence that was fickle at best, more breaking through my denial of recovery to let the truth of ongoing illness in. Then there are moments of resolution, mostly led by my husband’s sensible, problem solving , kind voice where I decide actually I will be okay; I’ll be okay, I’ll figure it out.

It’s not what I want; I think that’s obvious. If I could do anything to change it I would. I tried to see if there wasn’t any way around this decision to relieve me of my job by not renewing my contract. I spoke with the powers that be reminding them of my loyalty, commitment, long term intentions and proximity, for goodness sake, if nothing else! But I can’t fight my way out of this. Maybe I have to let it be.

Oh that so does not sit well with me. But a good friend reminds me that maybe that’s the point; maybe this is a long term play for my strength of character not a short term game for my own convenience! Ahhhh…it’s hard to swallow but maybe I need that.

So here’s the situation: the workplace I was working in when I got sick doesn’t have any obligation to me, to rehabilitate me. I was working there on a one year contract when I got sick at the half way point, and wasn’t able to return to work for any more than two mornings a week in the last 6 weeks of the contract. And that was just a desperate scramble to try to be okay enough to stay on there. I was utterly unable physically, and not even slightly ready mentally to apply for a new full time contract, the only way that I could’ve stayed on. So the contract, and with it, the obligation, ended and I went back to bed. Not what I wanted, but I couldn’t do anything about it; I just wasn’t in a state to change things. It was what it was.

So then, after another 9 months at home, I started back at work with a short term contract at the next place that would take me. They also have no obligation to me, other than to offer the same support that they would offer any other employee. They took me on when I was returning to work; they knew that, and made some allowance. But it’s not their fault, not their duty. No special exemption or workplace mentors; no keeping a place for  while me while I convalesce and struggle to get back into the swing of things. You have to compete with every other well person and that’s just how it is. And when it’s over, it’s over!

Done                     3rd May 2016

I’m overwhelmed, I’m in dismay,

The job I had, the work, the pay

It did me good, it helped me stay

Above the blue line, come what may.

 

Now it’s over, my sad reply,

Tears of hurt and loss I cry,

Feeling useless, have to sigh

For fear of dark days once again nigh.

 

It did me good, it kept me busy,

Filled my days and weeks, and nearly

Convinced me that I was now surely

“Better”, “fixed”; was I silly?

 

Silly to be believe in “health” so easily,

Of usefulness, I thought sincerely

That all was good, I did feel truly

That this was it, “I’m better, really”.

 

The routine and the structure, see,

Work and occupation the key,

Helped me build life, ABC,

From sickness to health; 1, 2, 3!.

 

I got me carried away, and planned

To stay and work, but now that’s canned!

“I have no hours for you ma’am”,

It’s over; nothing to be gained.

 

You’re done here! Well it hit me hard,

I did not see it coming, barred

From that which made my life less marred,

It feels unfair, am I so tarred?

 

By that which has my brain entangled,

Bipolar, why have you now mangled

This, above all else was dangled

Hope, that by work I’d disentangle.

 

Please let me stay, I love it here,

The colleagues; the task; the jolly cheer,

And to my home it is so near,

Please let me stay, just anywhere.

 

I’ll type the scripts, talk on the phone,

Check the work that others have done,

I’ll smile, be nice, work with anyone,

Please, please, please don’t say I’m done!

 

 

 

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Unwilling or unable?

Unwilling, or unable?

This is a difficult call to make.

It’s so subjective.

All that we have to go on is my opinion versus your opinion, with whatever evidence each of us has gathered plus whatever balancing knowledge we have at the time the call is made.

It’s something that I’m still battling with, and because I’m battling with it, I assume that there are others out there fighting with themselves over this. I don’t know for sure if there are, but I’m writing this anyway, for me and for anyone else who gets it.

Before I got sick. Such a statement! Also hard to define but I’ll use it anyway.

Before I got sick, I found this line easier to determine.

I’d get home from work, tired out and ready to relax and the thought of having to get together the where withal to get up and going again seemed impossible. Everyone has felt like that at some time.

So it comes down to a battle of the will.

I know I’m tired, will I allow myself to sit down and relax or will I get myself up and going to an exercise class I love and know I will enjoy/the supermarket for groceries to make a better dinner/the week night Bible study meeting which I’ll feel so refreshed after?

Will I, won’t I, will I, won’t I? It was a mental battle. From experience I knew that if I pushed myself I would get through whatever it was that I had planned on doing. It wasn’t physically impossible despite my tiredness. It was a matter of setting my mind to it being a non-negotiable task and doing it! Like work. You don’t wake up in the morning and think will I, won’t I go to work. You just get up, do what you have to to get organised and go!

Well at that stage I did. As the stress of my last job accumulated and compounded I did find myself waking up with a feeling of dread (hello anxiety!) and thinking do I really have to go? What if I just don’t go? What if I say I’m sick? What if I just stay in bed instead?

I guess I should have known that that was something else. That this was more than usual reluctance to get out of bed. I’ve always been a mid-morning person. Getting up has never been easy, but then again it had never been like this. Lying in bed watching the clock tick around to when I should be leaving. Feeling dread and stress and fear with a little smidgen of hope build up until I thought they could physically burst out of my chest.

But in our house growing up, the words “lazy-bones”, “wuss”, “sook” were tossed about like “hello”, “goodbye” and “how are you?”. As a consequence of those terrible words being acceptable to apply to children, I always question my own judgement towards myself, and wonder if indeed I am being a “wuss”, a “sook”, “weak”, “lazy”, lacking in having a backbone or courage or dedication or commitment or appropriate drive?

I think I’m learning these days to give myself more credit. To remember that I am a dedicated, committed professional who knows her responsibility in the workplace and fulfills her duties creditably; who wouldn’t “slack off” or “be lazy” or “not pull her weight” unless there was a solid decent reason. All words that no one else has used against me by the way, except for my old inner voice that I’m slowly chipping away.

I’m learning to know my limits and to communicate these to others. Not with the phrase “sorry to be a wuss but…”! With the phrase, “I have done x and y and z today and I’m pleased that I have accomplished so much. That is all that I can manage today. Thanks for your understanding”.

I think it’s called being assertive. Having been terrified of confrontation all my life I never really got the practice of asserting myself. I knew the theory but that only gets you so far. These days I’m realising that I am a person with valid opinions and thoughts. I’m finding that communicating this directly to others results in a better outcome for everyone. And I’m not so fearful of confrontation anymore. Because now I know that I am an equal part of the conversation/discussion/interview. I’m not the weaker part having to make up to the stronger part anymore. These are truly great days for my personal development!!

But it still comes down to this: what and where are the limits?

When is it enough without being too much? When could I push myself more? When am I taking it too far and risking exhaustion? Do I have more energy than I think I have? Could I maybe do just a little bit more, or should I call it a day?

How can anyone know the answers to these questions?

And then there are the other factors: I just don’t feel like talking to anyone today so I don’t want to go, I feel very anxious about going so I think it’d be better if I stayed home, I just can’t get my head together to go today, I’m too drowsy/sleepy/exhausted/tired.

I’ve been told to push myself, but to be careful not to exhaust myself. I’ve been told to learn to know my own body so it will tell me when enough is enough.

Who teaches these things? How can I learn these things? How can I know the difference between my body being tired and my mind being tired?

My body tricks me all the time. I’m sitting here an hour after a good dinner and my body is telling me it’s hungry. I know its not, but that’s not how it sees the situation! So how can I be sure about my body telling me when it has had enough? It feels like a marathon getting up, showered and dressed some days; my body tells me that it enough but surely that can’t be the limit.

If I can’t tell the limits, how can anyone else? I suppose this is my main point after all. Here’s me: I’ve got these limitations of conditions, medications, recuperation. How, considering all the variables, can any other person tell me what or how much or where or when I should be doing what I’m doing?

Not that many have tried, to give credit where credit is due. Most people have been endlessly helpful, patient with me in my disability, considerate of my limits and thoughtful of me in the middle trying to make me work.

I really do appreciate that!!

I guess it’s always a work in progress. The fact is that I can’t do everything that I would like to do; that’s just how it is right now. I am learning to accept these facts as they are without judging them or myself; that’s huge progress!

With the energy and motivation I do have, I do what I can. I get tired and worn out faster than I’d like. I don’t have the stamina I want. Some days I wake up and it’s just not my day. Then after a nap suddenly I’m firing on all cylinders again. And tomorrow, I might be rearing to go! I just don’t know, and can’t tell. It’s a trying, sometimes frustrating game trying to figure out my agenda for the week, or even the day, not knowing when or how or what I’ll be like with any definite prediction.

Another thing that it is very hard is to differentiate between what the condition causes and what the medication causes. Am I suffering from a side effect, or is this just the part of the condition that we haven’t got under control yet? I think only a trained doctor could answer that with any certainty, and maybe not even then.

So, in the meantime, I hope I’ll do what I can, but not too much, and hopefully figure out just what that is!!